One More Day

I had a hard time deciding what to put in this post. I thought it would be a great idea to base this off of Hannah’s prayer from 1 Samuel, until I read it and decided a prayer for fertility didn’t exactly fit the bill… although there were a couple other reasons we didn’t update you mid-week.

Big Week #3

We’re SO incredibly happy to report that Andrew’s nausea was much more manageable this week. He was up watching movies and eating small meals just like the doctors hoped he would be most of the week. In the last day or so that’s changed and he’s feeling pretty crummy at the moment. I really hesitated posting anything about it because it just felt too good to be true.

A Hannah Update

I’ve been wrestling with a couple of health things of my own in the midst of this, most recently a lingering and brutal cold. I’ve been very happy to go to bed at the same time as Andrew, some nights even before he was ready for bed as I try to kick it. The last couple of days it’s resulted in aches, gross coughs, migraines, and working hard to accomplish daily chores between work and sleep. I’m honestly pretty exhausted and so grateful for this weekend.

And the Moment We’ve Been Waiting For

We’re happy to report that Andrew just has ONE MORE DAY of treatment. On Monday he will go in for his last small dose of chemotherapy! Then we work on resting him up until he’s regained his strength post-chemo. Your guess is about as good as mine as to how long that should take.

One Big Thanks

It just needs to be said again. I have been absolutely blown away by the love we’ve received from our friends and family during this time. A big thanks goes out to the people who have given up so much time to sit with him on chemo days. Andrew’s parents, his Grandma Pruim, my mom, and my Grandparents Boer have all worked together to make sure Andrew was taken care of on chemo days. I’ll never be able to repay that kindness; I love you all.

In Limbo…

Disappointing News

On Monday morning I awaited with a jittery heart the news that would determine the next week. Then the message came: Levels too low. No chemo this week.

I moved from sadness over the disappointed hopes of a quickly approaching end date to happiness surprisingly quickly. This means a week of board games, meals together, and movies, and I couldn’t be more excited about those blessings!

Next week, we anticipate that levels will be back up to where the nurses feel comfortable with administering chemotherapy.

And now, in this waiting for the final big week, it begins to sink in…

The Truth of the Matter

The thing Andrew and I haven’t talked too much about is there’s a chance that chemo will not be successful. There’s not a clear way of knowing this chemo is treating the cancer, because there’s not a way of knowing if the cancer is testicular cancer which has spread, or lung cancer which has just begun. If it is in fact lung cancer, we’ll likely have to begin over again with another treatment program. More chemo.

Waiting

We’re waiting on some big news right now. The blood work they’ll perform next Monday which will clear Andrew for chemo or delay him another week. Our move-in date to be finalized, or even estimated. And the CT scan six whole weeks after completing treatment which will tell us if the mass in his lung is bigger, smaller, or gone.

The Positives

We got a couch for the house! It’s delightful and ideal for hosting game and movie nights. We also got rid of an old couch, donating it to some Kuyper students who picked it up for us. We’re continuing to daydream about our space and checking boxes like this every week. Our next box to check is finding a Queen mattress, box spring, and frame for our bedroom. Feel free to let us know if you’re upgrading yours or getting rid of a spare!

The Part where You Come In…

This blog post is what’s on our minds. But here’s a bulleted list (with some action steps) for you to organize your thoughts:

  • There’s anxiety over the end growing farther away, and the uncertainty that waits for us there
  • There’s nervousness for the nausea that could increase and was very intense last time
  • We’d appreciate prayers against sickness in Andrew as there’s some things going around
  • We like to read letters from you all; that’s been enjoyable.
  • Any leads on a mattress would be much appreciated. we don’t expect to move for another month or two yet.

Ups and Downs

Not such a good week

This has not been a good week. Last weekend Andrew wasn’t able to keep anything down and by Monday was very dehydrated.

On Monday when Andrew went in for his scheduled treatment he ended up needing to use a private room with a bed for the first time. While his nausea has continued to improve throughout the week, he has returned for hydration every day, and is still tired and vomiting a few times a day.

Good Things

Even though this hasn’t been a very good week for nausea there have been several exciting things.

  • Andrew won a free board game from Game Boosters.
  • Hannah was able to have a couple of friends over this week for good conversations and much needed apartment cleaning.
  • The Big Data Ignite conference that Andrew works with has made some exciting speaker announcements. For anyone interested in Big Data, IoT, or technology this is a great local opportunity.

Closing Today

Today was closing day on our new house. We are now officially home owners!

`ap

Slowly but Surely

My Mom came to visit us in the chemo depot this week!

Big Week #2: A Summary

This past week can pretty well be summed up (after our last post’s adventures, of course) by Andrew’s suggested title for this post: All I Do is Sleep and Puke.

While it’s not a delicate title, it is a very accurate statement. There is also a lot of burps and a couple of small meals, as well as the rare Netflix shows and movies.

Another interesting note; I was asked if I work at the cancer center because I visited every day this week. They were about to offer me a badge to use instead of validating my parking ticket every time — I think I’ll regret not going along with it!

One Small Ray of Light

Perhaps there are other motives that would be more poetic or worthy to keep us motived and moving forward, but we are very excited to have a semi-finalized closing date on our new home!

Next week Friday is the date, a Friday the 13th, which hopefully doesn’t bode poorly for this type of adventure. We’re very hopeful that Andrew will be in good enough shape to attend the closing. I’m especially anxious for him to be there, considering if he doesn’t come I’ll be signing each sheet of paper three times! Once for myself, once for Andrew, and a third for Andrew as myself, his Power of Attorney.

The Light at the End

I titled this short post “Slowly but Surely.” This is a long journey in a short period of time, but I am finally beginning to see the light at the end of the tunnel. I suspect Andrew will join me once all of the sleep and the puke subside in a couple of days.

Today we enjoyed a big breakfast together, chocolate chip pancakes and all, and I cannot wait until we can enjoy all of life post-chemo with a clean bill of health.

The Light that is You All

Thank you for your time, care, and support. There’s not a lot to be requesting for in prayer or in action, but here’s what’s at the forefront of our minds:

  • It would be really awesome if Andrew could keep his food where it belongs. The sooner the better!
  • We hope that the chemo will be effectively killing all of the cancer cells in his body so the end of Big Week #3 can be the end of treatment.
  • We’re continuing to love and support one another, and to accept support when we need it. This is difficult sometimes.

Side Effects

Well folks, it’s Hannah here, reporting that chemo, otherwise known as Big Week #2, has officially begun.

The Good

Side effects can also be positive, right? We really enjoyed our extra week between chemo cycles. Getting to spend some quality non-sick time together, watching our favorite shows, playing lots of board games, reconnecting with a couple of people, and even taking a few walks was so refreshing! The highlight of it all was a real date night, sanitizing wipes, masks, and all!

Andrew enjoying his favorite thing: Endless Fries!

We went to see Men in Black: International (with some precautions)

More Good

Honestly, we are just so relieved that Andrew’s blood and pulmonary tests all came back okay. We’re glad to be back on track and moving towards the final goal: the end of Big Week #3 and a clean CT Scan! Oh, and moving to our first home. We get to close next week and we will be moving in a month or two after.

The Bad

With chemo week being this week, Andrew may not make it to our closing date, which is next week. We’re planning ahead so he won’t legally need to be there if he’s unable, but we’re hoping against hope that he can make it.

And the Ugly

Today, when I got home from work, I couldn’t find Andrew. When I did find him, he was stuck in the bathroom, unable to stand, stretch his hands, or move his legs. He’d lost power of some of his muscles. He’d also lost his afternoon snack and he was covered in sweat. At this moment I was so thankful that we live with Andrew’s parents. We called in Dad (Randy) the chemo expert as backup.

I was eventually able to get Andrew from the toilet to the couch with some leaning, shuffling feet, and maybe a little dragging. As I write this, he’s taking a restful nap and has regained feeling in and control over his limbs again.

The doctor told Randy this is most likely a normal reaction to an anti-nausea med. I’m really going to have to re-learn what “normal” means in this new context where stroke-like symptoms are resolved by Benadryl!

The Part where You come in

As already mentioned, we’re so grateful that you care, and that you’re following our journey. We’re thankful that you’re walking with us. Here’s what’s at the forefront of our minds:

  • We’re learning this new normal where weird and scary things can happen every day.
  • We’re preparing to close on the house and hoping for Andrew to attend without nausea or discomfort.
  • We’re grateful for no sicknesses so far and we’d love for us and our household to stay healthy.
  • Let’s have some strong thoughts and prayers against nausea as well as drug side-effects. There are some good side effects (see above) but this week will likely be full of bad ones.

Paint Chips

A Bright Array

Yesterday evening Hannah and I took a trip to the hardware store to begin looking at paint colors for our new house. It was a fun adventure and a good break from thinking about all of the things we can’t control. As a result we have come away with a large pile of paint colors and renewed excitement for our new home.

A Deep Purple

The color of the sky just before lightning on a summer afternoon when the world waits for what is coming next.

Yesterday ended with a farewell to our long time family dog Emma. After 13 years of life and about 11 years with our family, Emma stopped breathing. She had a good life and was playing with our puppy up until the day before.

Emma will be missed, but we are glad that she didn’t have to suffer much before she passed.

A Neutral Grey

Imagine low hanging clouds without much character.

Today things have mostly gone back to normal and everything just feels a bit boring. We are also all a bit drained from last nights events and the cumulative effects of dealing with everything else.

Mis-Matched Greens

The uncoordinated colors of the nurses scrubs.

This morning I went in for the pulmonary test, that was ordered to determine the next steps in Chemo treatment with the BLEO drug. (BLEO is known to affect the lungs and in some cases to cause permanent damage.) If all goes according to plan the pulmonologist person will have a chance to read my results today and everything will be over to the cancer doctor before Tuesday.

It was a bit harder to breathe this time around than I remember it being the first time. Thankfully the lady doing the tests was able to reduce the order for a full work up down to just two of the tests, so instead of and hour it only took about ten minutes.

Palette Selection

As we go into this holiday weekend here are some things we are thinking about.

  • Wild Blueberry – We are thankful that Andrew has had a good week. Despite the let down of not being able to proceed with treatment.
  • Fresh Green – We are excited to have a relatively healthy long weekend.
  • Wood Paneling – We are hopeful that Andrew’s results will be read in a timely manner and that the Doctors with be able to determine the next steps in the process.

Pushed Off One Week

What Happened Today

Today Andrew went it for what we thought was the beginning of another big week. Unfortunately after having his labs this morning it was determined that his levels have not risen enough and we need to wait a week before continuing treatment.

What This Means

The Good

  • Andrew will have another week without nausea.
  • Andrew will probably be able to go into the office for a couple days, depending on appointment schedules.

The Bad

  • Treatment will take at least an extra week to complete. This is a pretty big blow and will mess with care and work schedules.
  • Andrew needs to schedule and have a pulmonary test this week.
  • Due to the upcoming holiday the next full week will only be four treatments and may impact the effectiveness of the overall treatment.
  • Andrew may not be able to attend the closing on the house.

The New Schedule

The new schedule for our on and off weeks will be as follows:

  • September 3-6 – New Big Week #2 Dates
  • September 9 – Monday Check-in and BLEO
  • September 16 – Monday Check-in and BlEO
  • September 23-27 – New Big Week #3 Dates

Prayer Requests

  • We seek continued prayers for Andrew’s levels to rise.
  • We hope that Andrew’s pulmonary test this week won’t turn up any problems that would further complicate treatment.
  • Prayers for patience as we wait for the next steps in treatment.

Incoming: Chemo Week #4

Week #3

This past week has truly been a blessing. We really got to spend some quality time together before another Big Week of chemo, mostly nausea-free! Below are a few photos of our adventures:

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Andrew and Cheddar getting some work done

Agnes enjoying Andrew’s “Best Ever Head Scratch”

Visiting Huff Park near our future home!

Enjoying the Little Things

Concerns

We discovered Andrew’s white blood cell levels and A&C counts were quite low, so he’s been wearing a face mask in public to avoid getting sick. The message was mixed on probabilities of his counts rising, but we’re hopeful to see higher numbers tomorrow. If the numbers are not higher, the doctor may end up pushing everything back one week. We’d really like for that not to happen!

Preparing for Big Week #2

Is there really a way for us to be prepared for chemotherapy? In a sense, yes. Andrew’s bags are packed, the apartment is clean, his cozy pants are washed and ready, and we met with the nurse to create a plan for combating nausea better this time around. AND, we have you all!

As we head into next week, here’s what’s at the forefront of our minds:

  • We’re hoping counts will rise! This is really essential to keep everything on track. We would love to be done and cancer free 4 weeks from now.
  • We’re hoping nausea would be kept to a minimum with the new, stronger approach
  • Andrew’s port was installed in his chest two weeks back and he’s looking forward to no more arm pokes!

Say Good Bye to Hair

What They Said

When we started the Chemo process they told us Andrew would likely loose his hair as soon as the Wednesday of the first week. After the first week Andrew’s hair was doing great and we thought maybe he would be one of the lucky few who wouldn’t loose his hair.

Yesterday it Began

Despite our optimism it was not to be. Yesterday Andrew began loosing his hair rapidly. So this evening, after pulling tufts off his head, we decided to shave it off. He still has some hair, but we expect the last little bits to fall out over the next few days.

Other News

Today was also Andrew’s first day back in the office since starting chemo. It went well, even though he did need to wear a mask.

Monday we were informed that Andrew’s White Blood Cell Counts and a number of other Markers are very low. This means extra precautions against getting sick and could lead to a delay in treatments if the numbers don’t rise.

Prayer Requests

We pray every day for good health and symptom management. Today we ask for prayers in the following:

  • That Andrew’s counts will rise so that treatment can continue on schedule.
  • The adjustment to loosing hair.
  • Prayers against catching anything while the counts are low.
  • Prayers for a successful few days at work before chemo starts up again.

The Story So Far

A Quick Timeline

Here are some key dates in our cancer story.

  • January 5, 2019 – Andrew and Hannah get married.
  • February 2019 – Andrew is diagnosed with Testicular Cancer and has a same day surgery to try and prevent it from spreading
  • March – Mid-July 2019 – Andrew’s counts look good and we prepared for the all clear
  • July 23, 2019 – The Doctor Informs Andrew that the cancer has spread to a 9mm growth on his lung. Chemo treatments will be needed.
  • August 5, 2019 – Andrew began Chemo Treatments.

The treatment plan

Our treatment plan is a 7 week process made up of three cycles. In each cycle Andrew receives several different drugs.

The “Big Weeks”

In week one of each cycle Andrew has treatment 8 hours a day for 5 days in a row. These “Big Weeks” are pretty tough and the challenge is to manage nausea and keep his weight up.

Andrew’s Big week Schedule

  • Week one (August 5 – 9) – COMPLETE!
  • Week four (August 26 – 30)
  • Week seven (September 16 – 20)

“Off” Weeks

On the “off” Weeks Andrew goes in for a half day single drug treatment on Mondays. He also has lab work done to monitor his white blood cell counts and other blood markers in-order to make sure they can continue treatments.

Prayer Requests & Needs

While all of our immediate food and housing needs are covered, prayers for health, strength and peace are much appreciated.

Rather than meals, flowers, or fruit baskets here is a short list of items we would appreciate.

  • Follow along on this blog for updates related to health issues and talk about other things when you are with us!
  • If you are a member at Madison North there is a prayer plan being coordinated by Katie and Josh. Please reach out to them if you would like to be added.
  • Gift cards to Meijer (Andrew’s favorite place to shop), Olga’s (Hannah’s favorite restaurant), Apple Bees (Favorite date night activity), and Celebration Cinema (Andrew loves to watch movies) would bring us joy both now and after Andrew gets healthy!
  • Volunteers to help us move/paint/care for our new house after we close in September.
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